A newer d friend of mine – actually 2013 JDRF Children’s Congress Chair Angie Platt – had just posted about her morning. Her son with diabetes had awoken – as everyone with T1D does at times – with high blood sugar that would just leave most of us wanting to crawl under the covers [...]
Filed in: Advocacy • cool new diabetes tools • cure • featured • General Health • Inspiration • JDRF • JDRF Children's Congress • Kids Can • Teen Years and the challenges
There’s something going on in the diabetes world that I don’t quite understand. Well, I do understand it to a point, but I don’t understand how widespread it seems. The Facebook and other social media posts come often, and go something like this: Ugh. On our way. Wish us luck. Nervous. Hope I don’t [...]
Filed in: Advocacy • diabetes diagnosis • diagnosis • featured • General Health • Inspiration
It was like déjà vu all over again. Only this time, I was a little surprised at myself. Was I really on the phone with a university official, pleading for cooperation and actually nearly crying (all without my daughter with diabetes even knowing?) Hadn’t we moved on? Aren’t we the masters of the diabetes world? [...]
Filed in: featured • General Health • Inspiration • Kids Can • Teen Years and the challenges
I feel so guilty. I am going to go back to hard-core training, work my way up to another century ride, ask friends to donate to JDRF to support that ride, and basically give my heart, soul and a season or two to the cause of finding in a cure for Type 1 Diabetes. And [...]
Filed in: Advocacy • cure • featured • Fundraising • Inspiration • JDRF • JDRF RIde to Cure • Research
It was mid-winter and we were waiting. And waiting. For the letter. My daughter had applied before for JDRF’s Children’s Congress and been rejected. Each time, I’d watched with joy as a few other children from our chapter went off to Washington to represent us. Lauren had been interested in politics and advocacy since she [...]
Filed in: Advocacy • featured • Inspiration • JDRF • JDRF Children's Congress • Kids Can
It was early in the morning and I was in the base lodge of Taos Ski Valley, a mountain that looked to be a morph of everything I love on snow: cowboy-ish, woodsy, steep and natural; old school but enough modern to keep things moving. The sun was going to peek out over the mountains [...]
Filed in: cure • featured • General Health • Inspiration • Kids Can
It was “parents watch day” at my youngest daughter’s dance school and everyone was excited. Every other dance class week, parents drop their kids off and do errands or wait for the hour in the small waiting room; no peek into what was going on inside. But this was the week before the holiday break [...]
Filed in: Advocacy • featured • General Health • Insurance and diabetes • Kids Can • Uncategorized
Having finally finished the draft of my upcoming book (thank heavens!) yesterday was the first “normal” work day I’d had in a long, long time. Normal usually means I have three or four magazine and newspaper stories I’m working (this time of year they are almost always about skiing, my true love and career). Generally, [...]
Filed in: Advocacy • featured • General Health • Inspiration • Kids Can • Teen Years and the challenges
It started almost as soon as my Ride to Cure Diabetes effort was complete: friends, new acquaintances and even folks I barely knew started asking me: Can I ride with you next time? But here was the thing: there wasn’t going to be a next time. I did the Ride for Lauren’s 21st birthday and [...]
Filed in: Advocacy • cure • featured • Fundraising • Inspiration • JDRF RIde to Cure • Research
I am delighted to be contributing to Sanofi’s excellent site, The Diabetes Experience. There I’ll be doing everything from profiles on celebrities with diabetes to advice columns for parents to inspirational stories about folks in the diabetes world. Check out my first story, in which I learn more about some famous (and to be famous [...]
Filed in: Advocacy • diagnosis • General Health • Inspiration • Kids Can • Teen Years and the challenges
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It was “parents watch day” at my youngest daughter’s dance school and everyone was excited. Every other dance class week, parents drop their kids off and do errands or wait for the hour in the small waiting room; no peek into what was going on inside. But this was the week before the holiday break [...]
It’s almost here. Nearly a year ago I started thinking to myself … maybe. Just maybe. Six months ago I clicked on the link, signed up and made the first donation myself. JDRF Ride to Cure Diabetes. Death Valley, California. I didn’t own a bike. I’d not been on one (other than those cute [...]
It was driven into my head during the very first days we experienced life with diabetes (or life knowing diabetes was with us now. I still think if I’d been a more astute mom she could have been diagnosed three weeks prior. But I digress). From the first days on the hospital floor, doctors and [...]
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