On DOC Hope day: A story recalled

March 1, 2012By 14 Comments

Today is the Diabetes Online Community’s (DOC’s) self-proclaimed “Day of Hope.” Around the world, folks are writing the word “hope” on their hand and posting pics of it for all to see. It’s rather cool, if I might say so myself. It’s kind of like saying “Hope is here – right in the palm of our hands.”

Looking at all the photos this morning, I was reminded of a day many years ago when my daughter, then just a little girl, schooled an entire room full of Harvard and MIT professors and a few national political figures, in exactly what hope means.

It was a symposium and press conference at the prestigious Whitehead Institute in Cambridge, set up by then Senator Ted Kennedy to forward his goal to legalize stem cell research in America. My daughter and I were just getting to know Senator Kennedy back then (soon after she’s have his private cell phone and keep in regular touch with him up until his untimely death).

In case, some top scientists had outlined different concepts they had pursued around stem cell research, and different ideas they wanted to pursue moving forward.

A reporter interjected with a question.

“So what, exactly, has any of this research produced?” the reporter asked, looking for any one in general to respond. I knew what his goal was: to make it look like nothing, absolutely nothing, had come of any research.

A few scientists and MIT brilliant minds danced around the answer for a bit, talking about concepts and goals, but not giving the reporter what he wanted: some kind of product or treatment or medication that this research had produced.

Then my daughter, maybe about 13 at the time, raised her hand and said “Ummm …. It actually has produced something.”

Every head in the room turned toward her. I think the reporter was sneering, waiting for some kind of ridiculous answer.

Senator Kennedy, who was leading the discussion, urged Lauren to speak on. “Tell us, Lauren,” he said. “Because you, really, are the expert here.”

Lauren took a deep breath, looked around the room and then said something close to this:

“Every one of you researchers, every day you go in your labs and work on something like this, it produces something that helps me stay alive each day just as much as my insulin does. It produces hope. And I promise you, that hope helps me, and every person like me working hard to stay alive every hour of every day, in ways you might never know. So that’s my answer: you HAVE produced something. It’s called hope.”

The reporter was gape mouthed; the room burst into applause. Lauren’s comment became the very core them of Senator Kennedy’s fight to legalize stem cell research. It was used on the floor of the Senate; it was pointed out in a letter to then President Bush asking him not to veto the passed bill. (He vetoed anyway; alas.)

And for me, it remains a reason to keep working hard to help the JDRF and others fund research for breakthroughs. Every day, every lab, every test tube, is producing hope.

And my girl, now a young woman, still needs her daily dose.

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Comments (14)

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  1. Robin says:

    Awesome! :)

  2. Monica Kinney says:

    You, my dear, have a way with words!!! (as does your daughter!!!). Thank you for my daily dose …

    • Tracy says:

      A.S.C Waxaan ilaah ka raennjeyyaa inuu nawaafajiyo sida kheyrka ku jiro illryn ilaah ayaa yaqaan sida kheyrka noogu jirto wixii shar ahna Alla hanaga najeyo waxaan rabnaa ilmaheyna iney noo yimaadan oo kaliya ma aha ee waa iney noqdaan kuwo diintooda iyo dalkooda iyo dadkoodaba waxtara inshaa Allaah.U codee: 0  0

    • http://www./ says:

      I don’t know about the 6RA5. I am assuming that the tubes are about what you’d find in a radio (Teisco made radios), so the power output will be low, just enough to drive the 6 inch amp.It will probably start out clean and get dirty as you turn up the volume. It is most likely a neat practice amp and will work well with the GB. If you like the sound you can mic it through the PA and the amp becomes a neat little effects box to give you some tube overdrive and a little protection from feedback by tweaking the volume controls on the amp and the PA.Keith

    • Yes, being a survivor of rape and incest this would horrify me and not sure I'd fly because of it. My eleven year old is flying from Ohio back home and it is something he is already concerned about. When is enough enough?

  3. Krista Middleton says:

    Its not often I get teary eyed when I read stories of diabetes because I have been there so often and I feel like their stories are my stories and I have already cried so many tears when “their story” happened to me. Your post today was different though, as I sit here with my eyes still moist from the emotions I was not expecting to arise. So often I give up on hope. SO OFTEN. After 26 1/2 years as a diabetic I often think that hope has somehow passed me by. This disease often brings out so much bad within us that we forget about the good, the hope. I really needed to read this this morning. I needed to be reminded that I DO have hope, and I needed it to show its face again. Thanks Moira, and Lauren :)

  4. yet again.. chilll bumps as I read your words.. .so poignantly said.. .thank you for sharing :)

  5. shannon says:

    beautiful! thank you!

  6. Katie says:

    Thanks for the reminder to us, We need to keep hoping. And good for Lauren, too, putting the whole room full of people to shame!

  7. krisfitz says:

    What a great story. Hope to meet Lauren at Gov. Day – you have an amazing daughter!

  8. Nancy says:

    Brilliant! Moira, you are a gift! Lauren too….I just “hope” my Teresa still has “hope”. It is a conversation I will have with her soon.

  9. katie says:

    This is an awesome blog!..made me weep!thank-you for leading the way for the rest of us.

  10. linda buzogany says:

    I JUST talked about the very real physical impact of hope yesterday in my Neuropsych class….and I only KNOW it because of having a child with this disease (and feeling it leave when the vetoing was happening). I can only imagine how proud you are of your daughter. Thanks.

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