bionic pancreas

The one that might shock you until you read it: Why I WILL NOT sign a “petition to fund more for a cure.”

January 2, 2016By 23 Comments

There is a petition being passed around on line asking people to “demand” that JDRF and ADA “spend more on a cure” and less on other things. As someone who wants nothing more in life more than I want a cure for my daughter, I find this confounding. And I wont be signing it. Here’s […]

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Defining a cure: It’s unique to each person

September 15, 2015By 3 Comments

On the news the other night there was a piece about an amazing new “ice cap” that might just stop cancer patients from losing their hair. A doctor talked about it and said “I know it’s not a cure, but … it’s life-changing.” Then a patient said not losing her hair the second time around changed her […]

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What I learned in my JDRF RIde Training: That YOU are amazing

August 9, 2013By 1 Comment

Sixteen years ago it was probably there, right in front of my face. My daughter was getting ready to start kindergarten (what would be her first school experience. I was a “Home school pre-school mom” as I learned to say instead of  “no, we cut and paste at home” which all kinds of people freaked […]

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‘It’s always there.” (The one where I answer my own question of “Why keep advocating?”

August 1, 2013By 7 Comments

It’s a worthy question; one that deserves a thoughtful response. If I spend so much of my time speaking and writing about how someone can thrive and embrace life despite diabetes, why do I spend so much time raising funds and advocating for better treatments and a cure? Because really, I say it a lot: […]

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I Held Hope in My Hands, Part 2 (the one with Anna, her Awesome Abs and the APP Trial)

April 9, 2013By 9 Comments

Last week I shared how I HELD HOPE IN MY HANDS, and to be honest with you, I’m still kind of buzzing with a totally feeling of – to go all Guilana Rancic on you – amaze-balls. I honestly mean it when I say that while I’d truly been in on the discussion and idea […]

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